– For the Latest Update Click Here We have added a DONATE button to the top this page. Oh right, I forgot one of the screening questions: Ability to come to San Diego and be available for follow up, up to 4 months. I had tried to see if he could come to the dorms early but that effort might not be necessary on UPenn’s part or ours if we were in San Diego or back and forth. Yes, travelling with the Order of Malta, taking about 30 malades, those who are sick, ill and dying for healing, to the very place in the mountains where the Mother of Jesus, the Virgin Mary, appeared to a little poor girl Bernadette over 150 years ago and gave her many messages. Including the queen of France bringing her club footed baby. He will have a ceiling Hoyer lift due to his height and program needs.
After all, Archer needs help 24-7 and during the day, opening doors, holding doors, taking his hoodies on and off, charging his phone and ipad, putting food on a plate or tray, giving his credit card or meal plan card to a cashier, being fed, having his Camel back water pack refilled, emptying his cath bag, getting the hair out of his face if windblown, putting his foot back on the foot plates of his chair if one falls off the plate, letting him know if there are people behind him when he turns in his chair, etc. Like figuring out the location of the dorm room where and what and how big and accessibility given that all doors are card swiped, and figuring out tuition and cost of nursing care and what the days should be like.After working the lunch rush in the kitchen as the cook at the Beach Club of Cape May, Archer went down to jump in the ocean and cool off before returning to clean up and get ready for the next day. Luckily, Archer was surrounded by capable and caring lifeguards and friends, and he was quickly taken to Atlanticare Regional Medical Center in Atlantic City, NJ. And as for Archer, well, it’s an inspiring aspect of Archer I must say, his inner drive. I really never had a chance to write the education chapter, as it was always happening but there was just so much more happening medically. And then everything changed after week two in the ICU, and they told us we needed to find a long-term acute care facility, as Archer would never breathe or walk or move on his own. In the insurance scramble and the chaos, I had received a call from a stranger, now I see her as an angel, affiliated with an organization that had been following these very blogs. That led to beginning to look and consider other out of state alternatives. You know the rest of the story of the scramble of calls to the Chief doctor there at the Shepherd Center and the flight and the Blue Angels pilots and the crazy delay and well…we were on a flight to Shepherd in about 48 or so hours. Delight in the use, the ease, how often you need them all day long. Breathe in the goodness of your own use of arms and wrists. But back then it was also Archer’s not being able to tolerate being hand lifted out of his chair without great pain. And it’s not that it was every hostile or closed, it was just unusual for them to be collaborating in this way they said. And because Archer’s hands have no sensation nor do they have nerve endings to help move them, it’s nearly impossible to get gloves on him, so his hands can get very cold, and he doesn’t even know it. Well, the crazy thing about quadriplegia is that the brain doesn’t register the discomfort, and that is when Autonomic Dysreflexia sets in, so…. For those of you who might be thinking mittens, we tried them too, as they were definitely easier to thread on, but he was not able to maneuver the chair and the T-bar since he could not tell whether he was on the bar or not through the thickness of the knit. It just takes time and a lot of follow up and educating about a situation. By the way, happy late Passover, and late Easter and Happy Spring! We create energy fields for healing and hope and truth of what is possible. And I will take your prayer with me if you would like to Lourdes. Bruno said, We can never hope too much; the one who hopes for everything, obtains everything. He surprised us with his decision to apply Early Decision as he is interested, at least for now, in a specific program that is not offered many places: a dual degree in Engineering and Fine Arts/Film/Animation/Design.We’ve created this page to keep friends and family updated. But in essence, Archer told me within weeks of the fateful dive while in the ICU, using our message board of letters since he could not talk because of the ventilator and oxygen and feeding tubes in his nose and mouth, that he wanted to graduate with his class. I mean, the ICU was telling us in the first days that Archer would be discharged and we should look for a rehab center where he would be rehabbed for 2-4 weeks and he would then come home. The education part of that is that as I had been looking at facilities in Baltimore, one of the top things on my list was Archer’s schooling. Hold the image of Archer having the use of his triceps and wrists and whisper your favorite prayer. Again, another real marker in his progress as Billy and a few other strong men lifted him last month when they took him on a Spring Break trip with his lacrosse team to North Carolina. It seems that all the many hours of physical therapy and time have helped with further healing and strengthening without a doubt. The chief doctor who had delivered to me the disappointing news about Archer and I were friends and I did understand the whys. And, we are always learning too, so the educating goes both ways. Oh, Archer has been asked to have an art show, more about that in a later entry. Here’s a pic of all of us together for Easter Sunday. I want to sign off with joy in my heart and asking you to please pray for our trip to Lourdes and for the young man I will accompany, and for Archer that he will be chosen as the right match for the stem cell therapy, and for other injured young adults and their families who have reached out to me in the last six months or so for assistance. And in the interim, advocate when necessary, pray always. Two other schools with the program, Cornell and MIT are too far north for Archer’s quadriplegia to tolerate as his particular injury doesn’t allow his body to acclimate easily to changes in temperature, especially cold temperatures, and ice and snow make it hard to get out in his powerchair where he can maneuever it and still be able to communiate if needed on an ipad/phone which he can access by voice but not if it’s cold and or raining/snowing. If you have hard work to do with someone, it just can’t get done without face-to-face dialogue. I see my job for Archer as removing the obstacles that he shouldn’t be expected to have to do at age 18 or as a paralyzed young person when his energies are on finishing school and all that goes along with that.
And re Archer moving to college, there is soooo much to do ahead of time and so many doors and emails that may never have been opened but for going and physically, sometimes if only a few minutes, but nevertheless establishing connections. For any of you who might have special prayer requests, please send them to me. Being website and click Interested in Learning More. From the time of tryouts to now he too has grown more and more and he is now, as an 8 grader, 6’ 1” feet tall! He said it was a like a long sports tournament but with a lot more diversity and that it was really fun. So, it’s as if we need a somebody in close proximity but who is invisible until Archer needs him or her. We are actively seeking night nurses, two full time nurses who can care for Archer. He will forever be shiny on the inside as a result. He never once talked about it until all the performances, and then he wouldn’t stop. He looks back and talked about the rehearsals and the fun they had and what it feels like to have everything so nothing and then have everything come together. Interactions with others and college friendships are as important as the academics and quality of teaching it seems to us.It was a close call, avoided by interception of a faculty member. Another standing ovation, 3 in all, all initiated by the students. Britton’s side to make it easier for his headmaster to drape the yellow gold ribbon and Cum Laude Society pin around Archer’s neck. And there it was, the symbol of an academic achievement worn around his neck. No 18 year old should be required to navigate the adult academia world on issues unrelated to academics. If you have any ideas for us, please pass them along. When he visited last summer and fall, one person in the Engineering School expressed doubt that Archer could be fast enough to code on a computer given he had use of only “one finger”.We all waited and I think watched as much in curiosity as in amazement. I have met with some closeminded thinkers and I have met with some amazing people who were not only creative thinkers, but I could tell they were believers. I feel pretty good about where we are now at UPenn for Archer, their decision to accept him and his decision to say I do, and the team we are building there for his care. This was similar to Billy’s and my beloved alma mater, University of Virginia, who told Archer on a visit last summer that they couldn’t see 1.If you want to make a donation by check, please make payable to Archer Senft Special Needs Trust and send to Archer at 102 Longwood Road, Baltimore MD 21210. This page is dedicated to the progress and recovery of our 17-year-old son, Archer Senft. They are not equipped for what has happened to him. I had already been to Baltimore looking for the local rehab and knew that Archer, who was then 6’1” (now 6’4”) would not fit literally and culturally in a room at KKI where the rooms had two children and a crib. Imagine, his holding a cup with his wrists because he could gauge the surface and the weight. Maybe he could even feed himself a sandwich, or be able to brush the hair out of his eyes, or itch the side of his neck, or adjust his baseball hat. Or help a caregiver thread his arms through his shirt. Or give a hug and feel the warmth of the other person. Oh dear Mother Mary, please wrap your arms around us and guide the doctors and guide us. If you would be so willing, could we all pause a moment now and together think about the possibility of this happening. What more wonderful trip could there be, after all. The trip began with my seeking his acceptance to go last October. She had her son showing us things he could do like hold a stance on his own while holding the back of a chair, moving on his own in a chair, telling me he didn’t have to be in a wheel chair for everything but could tolerate a regular chair for periods of time. I took a very open approach telling them a few times about Archer, his needs, how it rolls and then the list of factors we would be looking for and asking to be included in the decision-making, assuring them that would be better for all. So he was not able to even get onto a sidewalk for some blocks. I’m sure you have something on your mind right now that might be troubling you. Amen Sending love Wednesday, March 15, 2017 Archer Senft Friends and Family Update Wednesday 3-15-17, Month 7, Year 2 Hello dear ones. And it’s also year two for us with you, as I know we have been on this journey together. He will begin in August and we have every intention that he live on campus as a regular student. We can thank another unlikely collaboration we created between Baltimore City Public Schools, Home Schools, On-Line Schools, and our dear Mc Donogh School for all of that.